Biz: great babysitter

Monday, November 19, 2007

Father, can you carry this?

Some questions were answered today and others were thrown back to us. This, of course, means that we must throw them back upon the Lord, who knows everything, even the end from the beginning.
According to Dr. Douglas, though oncology doctors might have different opinions about the appropriate "modality" (type) of radiation, all would agree that radiotherapy is necessary in Biz's case. Esthesioneuroblastoma has a very high rate of recurrence, even after what they call a "gross total resection" (i.e. complete surgical removal) of the tumor, such as Biz had. Microscopic disease cells often remain and become the source of a second tumor. Dr. Douglas doesn't recommend risking the potential aggressiveness of this cancer. Recurrence is almost always more severe and the statistics for success diminish accordingly. If Biz was his daughter, she'd undergo radiotherapy without question.
As to where and what type...there are essentially two primary options: photon beam and proton beam. The first, photon, is what we might call the "traditional" type. The second, proton, is a less-than-perfect, though much improved type of radiation that has less effect on surrounding tissue. This is the "hot ticket item" but is available primarily in Boston, MA and Houston, TX (there are 3 other centers in the US, but they are lacking in experience with either Biz's type of cancer or with pediatric cases). Dr. Douglas agrees that proton is the best approach technically, but suggests that because of Biz's age and some improvements in the photon application, the benefits of proton could be modest and must be weighed against the difficulty and family disruption associated with an 8 week trek across the country.
I won't bore you with statistics or percentages as I am reminded from the book of Isaiah that Yahweh is not bound by prognoses--He creates them. But I will ask you to pray for wisdom, for issues of insurance coverage, for questions about travel and living arrangements, and for the Lord's protection of Biz's affected healthy tissues--primarily her eye and her pituitary gland (from where such things as growth hormone come). Pray for us especially tomorrow (Tues.) as I will be making important phone calls and we will be making a decision--time is of the essence.
Pray also for contacts in either Boston or Houston where we can set up a "home base," maybe someone with an available couple of beds and a heart for hospitality. I will probably call some churches in those areas.
I know all this treatment and risk talk must have Biz concerned, but you'd never know it. It is the grace of God that allows a child to entrust overly heavy burdens to his/her parents and know that they will do what is best for him/her. At the moment I feel a bit overwhelmed, like one of our kids when they try to carry a suitcase that's too heavy for them, struggling along until they call out, "Hey Pop, can you carry this for me?" Deb and I trust that our Father will do for us what we would do for our own children. "Which of you, if his son asks for bread, will give him a stone? Or if he asks for a fish, will give him a snake? If you, then, though you are evil, know how to give good gifts to your children, how much more will your Father in heaven give good gifts to those who ask him!"

6 comments:

Anonymous said...

Greetings Tim and Debbie,

Am praying for you, especially today, Tuesday the 20th.

Looking upward,

Mark

Anonymous said...

Hello Daniels

Please know that I don't say this flippantly--but there is only one thing we know for certain. God will be good to Biz and to all of you. He will be good to you, dear friends.

Bev Linder

Anonymous said...

I know God will lead you and strengthen you perfectly. I am glad He has given you assurance of that as well.
We are praying for you and we love you all.

Anne

Anonymous said...

Tim and Deb...you are in our prayers. We will call you when we get the contacts in Houston. Have hope, dear ones...that hope that comes from God's love.

Ruth and Ken

Nonnie (aka Lauren)... said...

I have Christian contacts, and they have someone in the Boston area with information. I do not want to post their phone numbers here, but if you will e-mail me, I will get you their information. (I am a mutual friend through DeLyn Sanders in O'Donnell, TX. My hubby just had his prostate removed for prostate cancer, and God has healed him....PRAISE GOD!)

God's love & mine,
Lauren Childress

My e-mail: passion_for_prayer@yahoo.com

Anonymous said...

Happy Thanksgiving!
As David said,

"1 I will bless the LORD at all times; His praise shall continually be in my mouth.
2 My soul shall make its boast in the LORD; The humble shall hear of it and be glad.
3 Oh, magnify the LORD with me, And let us exalt His name together.
4 I sought the LORD, and He heard me, And delivered me from all my fears.
5 They looked to Him and were radiant, And their faces were not ashamed.
6 This poor man cried out, and the LORD heard him, And saved him out of all his troubles.
7 The angel of the LORD encamps all around those who fear Him, And delivers them.
8 Oh, taste and see that the LORD is good; Blessed is the man who trusts in Him!"

We continue to pray for Biz and the whole family, and on Thanksgiving Day we are especially thankful for the opportunity to have gotten to know you all. My sister and brother-in-law (Harry), who know better than the rest of us what you have been facing, send their love and their prayers for you as well.
Leroy and Janis

Girls at pool

Girls at pool
poor Garret...