Biz: great babysitter

Thursday, July 17, 2008

Hair

My hair is growing back! As of Wednesday I stopped shaving my head because Biz is done with chemotherapy and she and Deb are home. A summary of Biz's chemo experience was captured in the words of a friend who said, "for such a tiny, little girl I don't think I've met anyone tougher."
Deb and Biz arrived home on Tuesday, earlier than expected (while we were in the middle of house cleaning). Biz and I made a brief return trip to Children's Hospital on Thursday for an infusion of platelettes, but aside from that everything seems to be going according to plan. We'll all be glad when Lydia gets home from her missions trip and we can be together again as a family (and maybe get some vacation time).
My hair's off to Biz, to Deb, and to anyone else who reads this and has gone through such an experience. To the rest, I say: Grow close to Jesus Christ. Your time of testing will come, and you want to be as prepared as possible. You need a reservoir of trust in his love, sovereignty, wisdom, and goodness. These are not things you want to learn in the process, and everyone will go through such times.
Thanks to everyone who has kept up with the blog and prayed, to all those who sent hats and other items of encouragement, to all those who cooked meals for me and the other kids, and to all those who filled in where I was unable. The Lord used you in answer to our prayers for strength and comfort.

Wednesday, July 9, 2008

Biz is done...sort of

Biz has officially completed her final round of chemotherapy!!! She and Deb met with the Dr. Johnson today and Dr. Johnson said Biz could continue if she wanted to, but there's no evidence that 6 rounds are better than 4 and the typical trimodal treatment process (surgery, radiation, chemotherapy) includes 2 to 4 rounds of chemo. She also said Biz's input was important, and Biz's input was "I'm done." So we're done. Sort of. We still have to wait for her blood cell count to come up. And, she'll need another biopsy, a kidney test, a hearing test, an MRI, and a CT scan--among other things. These will all be done after a week or two and then we'll settle into the routine of regular check-ups and scans. But that's small stuff, comparatively speaking. For tonight, Deb and Biz are thinking of something they can do to celebrate.
Praise the Lord.

Monday, July 7, 2008

Where's that finish line?

All of me wants to have typed "Biz is done with chemo" on Sunday, but we've had an anticlimactic end--we hope--with the lingering prospects. Oh well, we'll celebrate eventually, and we'll find out more in a couple of days. In the meantime, Biz and Deb are at the Silverstein's house in Seattle and Biz feels well. She and Deb met with an eye surgeon today about some reconstructive issues and they were really encouraged. Nobody wants more hospital time, least of all Biz, but we're glad to hear about the options. We'll see where things head from here. Needless to say, even post-chemo is not simple--but it's better. Thank you, Lord, for care and strength and guidance and perseverence.

Saturday, July 5, 2008

Another who needs the Lord

Children's Hospital is both the most wonderful and the most terrible place to be--wonderful because of the care one receives and terrible because of the sad struggles that many families are facing. Deb called and asked us to pray for Sherrice and her little baby, Felix. Deb and Biz met them during Biz's second round of chemo. While the hematology/oncology wing is being upgraded, patients must share a room. Biz shared one with Felix, a 4 month old whose liver had stopped working. At the time they met, Felix was crying constantly from pain and his stomach was distended. Today (6 weeks later) he's in ICU on life support. The doctors cannot figure out what's happening. Sherrice just had a meeting with the doctors to "discuss her options." Without a miracle, Felix doesn't look like he's going to make it.
Sherrice, a mother of two, is 19 years old and alone in this. She has no husband to help shoulder the load. Please pray that she would have a relationship with the Living God through Jesus Christ. He can save her and he can help her. He can also save Felix, because what is needed is a miracle. It's times like this that we're reminded that we are dependent upon the Lord. Doctors are wonderful, but they are not God. Sherrice and Felix, like Biz and the rest of the Daniels, need the Lord.

Wednesday, July 2, 2008

Final Round?

Some rather disconcerting news, about which we seek your prayers: today Deb and Biz met with a nurse practitioner because Dr. Johnson was away on vacation. The nurse practitioner was under the impression, because of an earlier conversation with Dr. Johnson, that there will be yet another round of chemo after this one.
Obviously, this is not what Biz (or any of us) wants. As it says in Proverbs 13:12, "Hope deferred makes the heart sick, but a longing fulfilled is a tree of life." The longing is to be done with it all. On the other hand, we want to be certain that Biz receives all the treatment that she needs. Better one more round now than many later. Please pray for our and the doctor's wisdom in this matter. Our greatest wish is that it be just a misunderstanding on the NP's part.
So, Biz has begun round 4 (hopefully the last) and needs your prayers. Please pray for (actually against) her nausea and any other harmful effects. So far she's doing great--all tests have been excellent. She's also been very upbeat, if not a little too active. The Lord is good, so he's good to Biz. We'll wait and see what's in his plan.

Saturday, June 28, 2008

Loss and Freedom

Biz and I had to return to Children's Hospital yesterday for an infusion of two units of red blood cells. She and Deb were allowed to return home on Tuesday, a little earlier than expected, with the caveat that Biz have daily blood tests at the island clinic. Their concern was that her counts were borderline, and they wanted to see improvement, which unfortunately never came. So on Friday we made the trip (Deb stayed home) back to Seattle for needed care. Today, Biz is at the ranch and doing fine. Praise the Lord for his goodness.
One thing that made the trip especially disappointing was that her cousins (Deb's sister and her family) had just arrived Thursday night and she didn't want to miss time with them. One thing about illness and treatment is that it's full of sacrifice and loss--like it or not. So today the three girls all went to the ranch together, which I'm sure will be a highlight for all of them.
Lydia arrived safely at "The Lord's Boot Camp" in Florida to prepare for her missions trip to Malawi. When Deb and Biz are gone that makes the house noticeably empty--three guys, that's all. Since Deb and Biz will begin the final round on July 2nd, the boys and I made our Fourth of July plans. We're going to camp on the boat in Fisherman's Bay to watch the Lopez fireworks. And we're going to celebrate the fact that we live in the greatest country on earth, where the research and treatment that Biz needed flourish because of the power of freedom in industry and optimism in human endeavor that pervades our society.

Friday, June 20, 2008

Three girls, three burdens

Biz handled this round of chemo just about as well as possible. She was really nauseous at discharge time, so the nurse told her that if she got sick she'd have to stay. By sheer determination Biz held it in until they were discharged and reached the parking lot. Good thing she told Deb to bring a bucket. Beyond that, she has been eating well and feeling well.
Biz has been able to take riding lessons at a nearby ranch about twice a week, too. We all (Tim, Deb, Lydia, Connor, and Sam) were able to watch one of her lessons the other day because we're all in Seattle to see Lydia off. At 10:30 this morning Lydia will board an AirTran flight to Florida and Teen Missions, Int., with whom she will spend a good part of the summer in Africa. We're really proud of Lydia because she has the desire to serve Christ in this way and because she had to make most of her preparations without the help of mom. Once in Malawi, she will be with a team of kids who will share the gospel in local villages using music, drama, and puppets. They will also be showing the Jesus film in the evenings and working at one of Teen Missions' AIDS Orphanages. It sounds like a tall order. Please pray for the success of Lydia's travels and ministry. Please pray for all of my girls. They all have big items on their plates.

Thursday, June 12, 2008

Yeah!!!

The biopsy found no evidence of cancer!
Neither did the PET scan.

Biz said, "Great, let's go home now."
The doctor said, "Sorry, this cycle and one more."
I say, "Four cycles are better than six."

Jesus, thank you for taking away Biz's cancer. Please keep her healthy and help her to weather the next couple of chemo cycles with as little discomfort as possible. We love you. Amen.

Wednesday, June 11, 2008

Round 3

Tuesday, Deb and Biz flew out of Friday Harbor at 7:30am for a 9:00am kidney test (5 hours long). On Wednesday, Biz will have another hearing test and a PET scan. All of this is being done to assess the effects, both positive and negative, of her chemotherapy so far. Assuming they find nothing unexpected, Biz will begin her 3rd round of chemotherapy on Thursday. It's hard to imagine how poorly it can make her feel, especially if you've seen her upbeat and happy spirit over the past few days at home. Please pray that she will feel well and that the chemotherapy will be effective.
We still have not heard back about the biopsy they took on the 5th. While we trust the Lord with whatever we hear, we expect good news.

Thursday, June 5, 2008

Deb and Biz will fly home tonight, after Biz's biopsy, for a few days' "visit." Please keep the biopsy in your prayers today. Tomorrow pray that their stay at home would be encouraging and refreshing. Some ladies from our church hired a lady to clean our house to facilitate this...I've decided not to take this as an offense...She came this morning, and the place looks great for my girls' return.
One thing Deb and Biz plan on doing before the biopsy is hunting down Sean, Sara, and Eva Parsons. Her bacterial infection has taken them down to Children's Hospital as well. Please keep them in your prayers.
Another Calvin & Hobbes:

Tuesday, June 3, 2008

The Process

Right now we are praying and waiting for Biz's ANC count to reach 500. It's a bit technical (for me) but suffice it to say that's the blood count number that allows her to come home. Physically she feels fine (all praise to Jesus). That makes the waiting a bit surreal--I feel well so why can't I go home? Whenever she and Deb do get here it will only be for a short visit since Biz has kidney and audiology tests on the 10th and they can't leave until after the 5th. That's the day on which Biz has her second biopsy.
The results of the biopsy are CRUCIAL. Not only do they determine the number of treatments ahead (if it's clean, she'll have two more treatment cycles; if not, she'll have four), they will also be an indicator of the effectiveness of treatment thus far. For obvious reasons, we ask you to pray for a clean biopsy.
We can do nothing but trust the Lord in this.
As you pray for us, please also pray for Sean and Sara Parsons (members of Islands Community Church) and their little girl Ava. She's about 6 months old and has a "mystery illness" (that is, a mystery to everyone but Lord). It has been very serious and dangerous, so far. The island is a beautiful place to live, but its limitations are most evident at times like this. Please pray for their spirits as they weather this trial and for an accurate diagnosis and speedy recovery. Lord, please give Sean and Sara wisdom and direction as they seek care for their daughter and please protect Ava through this process.
Biz and I share an affinity for Calvin & Hobbes. (Click on it to enlarge).

Wednesday, May 28, 2008

Everyday (and another Hat Award)

Last night I asked Biz how she was feeling. She said, "I feel good now, but it just comes and goes." That's everyday--for at least the first week after treatment. Nevertheless, Biz's spirits are up and you can see the "fight" in her. I ran into Kris Phillips at the grocery store yesterday and she remarked about how encouraged she was by Biz's sense of humor (they had spoken earlier in the day).
At this point Biz's blood cell count will start to decline. Though the nausea is subsiding (yeah!), any sickness for the next week or so is serious. I thank the Lord that we don't also have to fight a deflated spirit.

On a lighter note, hats continue to come in. Such variety--some make Deb jealous, some make Lydia jealous. Here's one that made Connor jealous. I'm giving it the "3:10 to Yuma" Award. You'll notice our model's resemblance to Russel Crowe! (This is a pre-head shaving photo). The award for this fine head covering goes to Don and B.J. Craddock of Cape San Juan.

Saturday, May 24, 2008

Good night, prayers answered (and still needed)

Thank you for praying; Biz is feeling much better! She slept all day yesterday and most of the night, only waking up because she was hungry. She ate two bowls of chicken noodle soup and some string cheese. Deb thinks the biggest problem was that Biz was over-medicated with anti-nausea drugs (she couldn't even remember yesterday when she woke up!). During the day yesterday Deb began to "interfere" a bit with the medications (anti-nausea, not chemo), knowing how poorly Biz did when they gave her morphine after surgery. She asked the nurses if they could start with half-doses and see where that led. There was a marked improvement after that and, except for a short time this morning (just before her next dose), Biz has been feeling well. If she continues to feel well, they'll discharge her tonight.
Then we begin to pray for her blood counts and safety from infection.

Friday, May 23, 2008

Rough night, prayer needed

Last night was a rough night for Biz. The chemo makes her pretty sick and the anti-nausea medication wasn't very effective. I just talked to Deb and she said Biz is sleeping and feeling a little better, but Deb sure covets everyone's prayers for our daughter's well-being and strength.

Thursday, May 22, 2008

Round Two

Biz's second round of chemotherapy begins today. Please pray for its effectiveness, for Biz's optimism and strength, and please pray against nausea or potential illnesses from her depleted blood counts. It will also help if you will pray for Deb's wisdom and spirit as she supports Biz through it, and for the rest of us as we're apart.

In pursuit of victory, players in the National Hockey League have a "good luck" tradition not to shave during the playoffs. In the same spirit of optimism, I (Tim) have adopted a new look for the remainder of Biz's chemo treatments--in pursuit of victory:

This was a challenge for me, as my scalp has never seen the light of day. The bright white skin makes my head look like a light bulb and will until it "tans-up" a bit. It was also a challenge for Sam, who tried to talk me out of it (Connor ran the clippers) and was too embarrassed to go into the grocery store with me afterward. Just when I was beginning to think I had made a mistake one of the kids on Sam's Little League team (we had a game yesterday) gave me the encouragement I needed: "Coach, you look good bald." Thanks, Julian.

Later that evening, a group of guys who all want to be a part of Biz's support team heading into this "playoff round" met at the Posenjak's house and you can see the results. This was one of the most entertaining nights I've spent in a long time:
Kirk and Peter Holt.

















Brian Lambright









Brandon, Ryan, and Adam Allen (father David was also "groomed" but I don't have a photo. I know that Dave will be disappointed).

























Bryan and Dylan Posenjak












Oh, and one more, Mom:










The final results looked like this:

Monday, May 19, 2008

Family Effort Award

The Patton family, friends of ours from St. Louis, sent this picture along with a box containing the same hats. Each hat was chosen by its respective wearer. From left to right we have Alison (8) wearing a newsboys cap--very cool! Then there's Emma (6) wearing a hand-knitted fuzzy, baby blue and pink hat--very warm, and very feminine. Megan (3) sports the hot-pink fishing hat--essential attire for an islander. And last, but certainly not least, Julie (2) with a crocheted ball cap--just look at that enthusiasm! Hat selection tells you a lot about the personality of each one.
For their remarkable showing, we are awarding to the Pattons the "Family Effort" award. Congratulations, Pattons! That will sit nicely on your resume someday.

Saturday, May 17, 2008

The First Hat Award


The hats are trickling in, so it's time to give out the first hat award. Today's honors go to the Holt family of Friday Harbor, WA, for...well...the first hat. This hounds tooth beauty, with leather brim and brass buckle, is intended to be accessorized with large, "J-Lo" sunglasses and hoop earrings. That's what I've been told.

Wednesday, May 14, 2008

Blessing Us Behind the Scenes

Yesterday was Sam's birthday, and it was not forgotten. Even as Deb and Biz were traveling, Kris Phillips was preparing Sam's favorite meal--hot wings with extra hot sauce--and Koshi Holt was making this cake! Koshi, who tends to be a bit of a perfectionist, apologized. "Sorry, I messed up. I'm not a professional." We all tried in vain to find the mess up. I think it was the best decorated cake that's ever been served in our house, and it was delicious, too. By the way, the hat and ball were made of licorice strings.
Actually, I wanted to post this picture as an illustration of just how well we've been cared for by our friends. Koshi has enlisted a dinner brigade to feed us while Deb and Biz are away. It is truly an "extra mile" brigade...the meals show up at dinner time, hot! This time of year, with two boys on separate Little League teams, we have had some very strange dinner hours (e.g. 4:00pm; 8:30pm). But that has deterred no one.
I thank the Lord each night for those who have made the burden lighter. When you remember to pray for us, please remember to ask the Lord to bless them, too.

Tuesday, May 13, 2008

500!

The doctor said Deb and Biz could come home if her white blood cell count was at least 500, but didn't expect that it would be. After plenty of prayer, Biz's count hit 500--exactly. So they are now en route, and we are feverishly cleaning the house. Happy birthday, Sam!
We can't wait to see them.

Friday, May 9, 2008

Concerning Sam

Tuesday will be Sam's 9th birthday. That's also the day when they next check Biz's white blood cell count. If her count is above 500, she and Deb get to come home, which would be an answer not only to Biz's and Deb's prayers, but also to Sam's. Dr. Johnson is not optimistic about that prospect, but we'd sure appreciate it if you would pray with us toward that end.
Since Deb checks the blog from Seattle, I think I'll include some pictures to help her remember the rest of us. Here's Sam at 2nd base.
And here he is...well...after his sisters got done with him.

Wednesday, May 7, 2008

Times when you can eat what you want

Deb thinks they've found the medication that works. Biz was able to eat some ham and about a half a jar of pickles! Hearing this brought back memories of running out to Steak n' Shake at midnight (several times) because my pregnant wife had a taste for one of their chocolate shakes and some french fries. When they haven't eaten all day you just don't argue with the menu selection.

Tuesday, May 6, 2008

Sick and Tired

Connor, Sam, and I returned this morning from a 24 hour visit with Deb and Biz. They're staying for a few days with the Kazens, who have a beautiful spot right on Lake Washington--with a dock. Sam was lamenting that we "forgot" our swimsuits. I felt just terrible about that...what with the temperatures hovering around the upper-fifties. It's odd that the girls didn't ask me to bring theirs.
Biz is really feeling lousy and Deb is feeling "mother-watching-child-suffer" stress. The pharmacist at Children's Hospital armed them with six different anti-nausea medications and their job is--by trial and error--to find out which one works for Biz. A friend who went through this herself said that when they get it figured out, it may work for a while and then change to another. So Biz has become a walking science experiment, and when she can least stand it, but it's what must be done. The nausea must subside to the point that she can keep her food down or they'll have to insert a feeding tube and give her IV fluids. Biz, like her mother, is not fond of medications. She said these ones make her feel strange, which is apparently a condition worse than nauseous. I think I'd have a more pragmatic (Deb would say, wimpy) approach: "Just give me one of each and something in there will do the trick. Oh, and what's my name?"
If you've ever felt so nauseous that the thought of food makes you sick, you know how to pray for Biz. If you ever watched your child suffer when there was nothing you could do about it, you'll know how to pray for Deb.

Saturday, May 3, 2008

Disappointment...

The first day of chemotherapy went well. When I talked to them, Biz was feeling just fine. I know the effects of chemotherapy are cumulative, but it was reassuring to know that she started out well. The process of applying the medicine takes three days--Biz gets the three medicines for about 5 hours followed by several more hours of IV fluids just to flush it out of her kidneys. They will be done with this first round by 9:00pm Sunday.
Their greatest disappointment came when they were able to take a walk after Biz's chemo. They came out to a courtyard that we had never found before. It had a gate that opened onto a small street and, they could hear the familiar sound of the obnoxious tune blaring from the truck of THE ICE CREAM MAN! Deb grabbed some money and, while Biz waited at the gate, ran to flag down the ice cream man. Never mind that the hospital will give Biz all the ice cream she wants, there is something different about a Good Humor bar straight from the truck. But it was not to be. The truck had passed and was on its way to other expectant children (and child-like adults). My prayer is that this would be their greatest disappointment in the entire regimen.
Now they have a mission. They plan to wait at the gate at about 4:30pm every afternoon in hope that they can catch the ice cream man. I'll keep you posted...

Friday, May 2, 2008

Remember Biz today

Thank you for all your prayers on behalf of our daughter. Please remember Biz today as this is her first day of actual chemotherapy. Pray that the only side-effects she experiences are those that are necessary for her healing.

Thursday, May 1, 2008

Bonus Day

As my friend, Anne, said this morning when she called me (Debbie) at home, I feel like I'm cheating the system. Yesterday, when Biz was having her kidney test done, the doctor came in and said the results from the test would not be back in time to start treatment on Thursday, so they were changing the first treatment to Friday. Biz lit up and asked if we could go home for a day. I told her I'd think about it. Four or more hours to get home and then another four or more to get back, in order to spend less than 20 hours at home, 8 of which we'd spend sleeping did not sound like it was worth it. As I was thinking about this, in the providence of God, Tim called. He was just calling to tell me that since our visits home were going to be so brief we should fly instead of taking the ferry. Aha!!! I hung up and Biz and I decided we'd fly home and surprise Tim and the kids. A 45 minute trip each way instead of 4 hours. I should have had the video camera with me when Biz and I drove up to the baseball field where Tim was practicing baseball with the boys (we borrowed the church van when we got onto the island). He was completely shocked and completely thrilled. So, we are thanking God for a bonus day! Biz is spending the day at the Ranch with the horses she loves so much and her sweet friend Roxanne, and I am at home doing school with the boys, and the 4 loads of laundry that have already piled up in the 2 days since I've been gone, and loving it. Once again, thank you for your prayers, having a day at home when you didn't think you'd be back for another two and a half weeks means more to us than you can imagine. I know that days like this are totally a gift from a gracious God, who loves to surprise us with good things, and I also believe they are the direct result of His answer to your prayers for us. Thanks, Debbie

Wednesday, April 30, 2008

Management Problems

I just spoke with Biz and she is in the dialysis area of Children's Hospital awaiting her kidney test. In some ways, the kids and parents in that wing find themselves under a greater test of perseverance than we have known, as they must show up several times a week for several hours a day--indefinitely. Biz will only have to be there occasionally over the next few months to assure that the chemotherapy is not having a deleterious effect on her kidneys.
As I try to come up with a "home efficiency plan" I appreciate even more all that my wife does. It seems so natural for her, but for me...well...I forgot to buy toilet paper. It's called "crisis management" when I'm in charge of the homestead--anything but efficiency.
For some reason I'm less prepared for this round of treatment. I think we gave it more planning time when Deb and Biz went to Houston. There's also a lot more "spontaneity" about doctor's appointments and timing because we are "so close." Not to worry...we're like runners stumbling out of the gate. We'll have to run a little harder until we're back in the race.
We set up the table in my office again where the boys can do their school work. This may be one of the least convenient aspects of my wife's absence, but it's also one of my favorite. I like to watch the boys learning. Hopefully, when my wife gets back, their education will be none the worse for wear.

Tuesday, April 29, 2008

A higher hurdle to jump

The regimen that Dr. Johnson is recommending is "platinum-based," made up of three different medicines (carboplatin, ifosfamide, and etoposide). Her analysis was extremely thorough and she very carefully evaluated treatment recommendations from several other oncologists. We really trust her opinion--which is in effect what it is, given the rarity of the cancer.
For Biz, this means a few predictable side-effects (hair-loss, nausea/vomiting, and tiredness) and some potential and very undesirable side effects (kidney or bladder function problems, hearing damage, and danger of serious illness from low white blood cell counts). These are the matters for which we seek your most fervent prayers.
For the rest of us--we were told that Biz (and Deb) should expect to be away from home for at least two-weeks at a time, coming home to "visit" for a few days before the next round of chemo. I had imagined this to be a "worst-case scenario." It just got moved to "best-case." Dr. Johnson is not comfortable at this point with any less than four cycles, and we may be looking at six. With cycles occurring three weeks apart, you can do the math. We're looking at 3 to 4 months of treatment. Looking, as I am right now, at my boys trying to do their school work in the waiting room, I'm realizing how high a hurdle this separation will be. Almost as high as Biz's. If she can make it, so can we. "He will keep you strong to the end, so that you will be blameless on the day of our Lord Jesus Christ. God, who has called you into fellowship with his Son Jesus Christ our Lord, is faithful" (1Cor. 1:8-9).
At this moment Biz is in surgery having a central line inserted. I think she doesn't mind the pain as much as the anesthesia, and hospital gowns (they're never warm enough). While she continues to grow in character, please pray for her perseverance, and strength to jump the hurdles.

Monday, April 28, 2008

Hat's Off to Biz!

Often the most visible side effect of chemotherapy is hair loss. So I had an idea!! (I have to say at the outset that Deb is not always convinced by my ideas--like this one--but since I'm smarter than her, I think I'm right. After all--who invented MaCheeSauMe?! Good point, good point...)
Well, I thought it would be fun (for anyone who would like to participate) to give Biz a hat. After all, with summer coming she'll need to keep the sun off her head... Actually, I just thought this would be a fun way to say "Get Well Soon," sort of an alternative to Hallmark!
Use your imagination. See if you can come up with something that will remind her of you or your family or some memory of Biz or a significant event. Maybe just something that catches your eye.
I'll be posting pictures of the prettiest, ugliest, funniest, most meaningful, and ones that she actually wears.

I've been thinking about this one, myself:

For those of you with more sophisticated tastes, Biz's hat size is 6 5/8.

Sunday, April 27, 2008

Chemotherapy: Beginning of Week One

Monday evening Deb, Biz, the boys, and I (Lydia will be staying with a friend for school) will head down to Seattle for an early Tuesday meeting with Dr. Johnson. Later that day she'll have a minor surgery to insert a central line (like a super-IV). On Wednesday, Biz has a baseline hearing test and 5-hour kidney test, which leaves me with one question: what do they do for 5 hours? I imagine it has something to do with drinking a lot of objectionable liquids.
Biz's first round of chemo is scheduled for Thursday.
The boys and I will come back to the island on Tuesday evening and return to Seattle on Friday morning. This is a consequence of competing goals. On the one hand is the priority of Biz's medical care, on the other is the desire to maintain the normal course of life for the other kids. I'm not sure if this ever works out exactly right but, with Deb in Seattle, Biz will be in very capable hands. How Lyd and the boys fare in my care is questionable. Of course, part of the solution is MaCheeSauMe. This is my own specialty. I like to say it's Indian for boxed Macaroni and cheese, extra Cheese, spaghetti Sauce, and Meat (whatever happens to be left over in the fridge). I'd tell you to write me if you'd like the recipe, but if you need a recipe you probably ought not to be near the stove. I ought not to be near the stove, but necessity is the mother of invention so, voila--MaCheeSauMe. Anyways, the boys love it, Lyd smiles and chokes it down, and I make enough to take leftovers to work. Maybe I'll take a picture of it so you can pray for us more...intelligently.
The Lord is good, and everything he does, and all that he provides, is for our good. He gives us a hope that does not disappoint because he has "poured out his love into our hearts by the Holy Spirit, whom he has given us." Herein lies the focus and the goal to persevere.
Rumor has it that the chemo will make Biz nauseous for a while. Please pray that she experience nothing but what is necessary in response to the medicines.
By the way, we all receive great encouragement from your comments. We end up checking all day to see who commented and what they've had to say. If you ever wonder whether we see them, we sure do. So, as the Spirit leads...

Wednesday, April 23, 2008

Tuesday, April 22, 2008

Just a lot of stuff

Yesterday we met with Dr. Rebecca Johnson, a very gracious and extremely thorough oncologist who herself had cancer as a young lady. The "cut-and-dry" fact is that Biz has either residual or recurrent cancer in her ethmoidal sinus. So, Dr. Johnson's recommendation is that Biz begin a chemotherapy regimen next week. There are still a few questions to answer before then, but if the plan stands, Biz will be at Children's Hospital on Monday for baseline tests and pre-treatment matters. Her first cycle of chemo should be on Wednesday.
The plan Dr. Johnson presented involves chemotherapy every three weeks. The application should keep Biz in the hospital for anywhere from 2-5 days and then require her to remain within one hour, door-to-door, from the hospital until her white blood cell count is sufficient to minimize the risk for further travel. This can take up to 2 weeks. For those who are not familiar with our location: home is two-hours, plus an hour and a quarter ferry ride (with departures varying from 2 to 10 hours apart) from the hospital. Needless to say, there will be some time away from home.
There is much to pray for in this plan, the foremost being its effectiveness. While we had been told that chemotherapy was ineffective in treating esthesioneuroblastoma, Dr. Johnson believes that not only is the sample too small to draw any definite conclusions (only 100 known cases among children worldwide since the 1920's--and vastly divergent treatment approaches) but she also believes that there is evidence to the contrary. Of course, as I read in Mark 1 last night, Jesus can heal all types of diseases. Another thing to pray for is God's grace upon our family in the disruption. It is possible that we'll be spending two weeks apart and one week together for a while. But the Lord controls blood cell counts, so he will not allow more disruption than we can benefit from. Hair loss for Biz is a prayer concern. She has such beautiful, dark, straight, long hair and her disappointment is significant. Our Savior strengthens hearts. There are also toxicity concerns. Just one of the three medications they plan to use can affect hearing and kidney function. Nausea is also common. Thankfully our Savior, Jesus, also strengthens bodies.
We look for, and constantly find, God's love in all of this. We are a bit overwhelmed at the moment, as there is so much to process, but we know that your prayers sustain us.

"On him we have set our hope that he will continue to deliver us, as you help us by your prayers. Then many will give thanks on our behalf for the gracious favor granted us in answer to the prayers of many." 2Cor. 1:10b-11

Appointment Change

Our appointment with the oncologist has been changed from 9:15 a.m. to 3:15 p.m. today so that the tumor board can meet first. They need to talk about the results of the biopsy and the PT scan from yesterday and decide on a course of action. Please pray for our strength.
During yesterday's scan the nurse said that we could call later in the afternoon to get the results "if it would help you sleep better tonight." I decided I'd rather not know. I guess I am not ready for more details until we can hear the whole big picture. At certain times of the day I can feel your prayers. I know that the Lord is carrying us in a difficult time. I know that God is good, and faithful, loving and kind no matter what. Pray that our faith (especially Biz's) would be unwavering and that we would remain focused on what we know to be true about the Lord, not on our circumstances. We are so grateful for all of you who check the blog regularly and pray for us so faithfully. It is a gift of God's grace to us and a huge comfort to know we are loved and supported by you. Thank you. Debbie

Monday, April 21, 2008

Perseverance

Perseverance is not something you have when the struggle begins.

  • "We also rejoice in our sufferings, because we know that suffering produces perseverance" (Romans 5:3).

Perseverance's blessing is a matter of hindsight.

  • "As you know, we consider blessed those who have persevered. You have heard of Job's perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy" (James 5:11).

Perseverance is not the goal; it's a tool.

  • "Perseverance must finish its work so that you may be mature and complete, not lacking anything" (James 1:4).

Perseverance is sustained by a focus upon Jesus.

  • "Let us fix our eyes on Jesus, the author and perfecter of our faith, who for the joy set before him endured the cross, scorning its shame, and sat down at the right hand of the throne of God. Consider him who endured such opposition from sinful men, so that you will not grow weary and lose heart" (Hebrews 12:2-3).
Please pray for our perseverance.

Friday, April 18, 2008

As you pray

Looking ahead to next week, what we know so far is that Biz has two appointments: Monday at 9:00am for a PET scan and Tuesday at 8:15am with the oncologist. Please pray for wisdom and healing.

Thursday, April 17, 2008

Just when things were looking up...

I find myself uncertain about what to write at the moment.
This evening we received a call from Dr. Perkins. Biz's MRI was not encouraging, and a biopsy taken during last week's minor surgery had "abnormal cells."
They will call us tomorrow to schedule an appointment with oncology.
Please pray for Biz.

Thursday, April 10, 2008

Stress passed

The surgery and the MRI both went flawlessly, and we're now at home recovering from post-traumatic stress syndrome. Thankfully, our stress was not a consequence of any medical concern but a response to the ferry schedule (for those not from the island--ferry stress is a natural phenomenon, accentuated in type-A personalities, resulting from the inordinate desire to accomplish everything on one's off-island to-do list and yet make the next ferry. Symptoms include speeding, praying, blaming your spouse for delays, and increased blood pressure levels).
At this point Dr. Perkins feels Biz should have bi-monthly, rather than quarterly, check-ups so our next round of appointments is being scheduled for the third week of June--the same week that we take Lydia to the airport for her missions trip. I may not survive such a week of fatherly trauma...

We are always so thankful to Jesus after these appointments for the quality of the doctors we have had caring for Biz. You can rejoice with us that so many of our questions were answered and that there was so much "good news."

Wednesday, April 9, 2008

Good Report

Biz's MRI was postponed until her nasal cavity can be cleaned out--in Biz's case this requires a minor surgery; after that, they'll do the MRI (this will all be done tomorrow).
This is a matter concerning which we seek your prayers. The only potential "fix" to these quarterly surgeries is for Biz to rinse her nose with saline several times a day--an unpleasant duty no matter how you do it. As the doctor said, it feels like snorting pool water up your nose. I say, "potential fix," because there's no guarantee that this will help, but it may. The sinus build-up might be a life-long cross for Biz to to bear, but diligence about rinsing may help her significantly. Deb and I are a bit uncertain about how to approach this as parents. We could take the responsibility upon ourselves to remind her and require her to rinse at intervals throughout the day, or we could say (as we have), "This is something you must own for yourself, since we won't always be with you." Better for her to learn this while she's young and in our home. The down-side of this approach is that a lack of diligence in this matter means a scheduled surgery at the otolarangology clinic--a prospect that Biz finds more unpleasant than rinsing. Pray for our wisdom and her maturity in this matter.
The good report is that Dr. Moe waived any thought of reconstructive surgery for at least 2-3 years, if at all. He assured us that healing is nowhere near complete; it may take up to a year, especially in radiated tissue where blood flow and normal growth have been disrupted. He is amazed at the fact that Biz has no double-vision and feels that time may resolve most, if not all, issues related to appearance. He warned that to do anything drastic at this point may result in us, "snatching defeat from the jaws of victory."
We continue to pray for Biz's healing and protection, and to give thanks for all of you who held her, us, and our family up to the Lord in these times.
Oh, we also planned on buying a new dishwasher on this trip off-island but on the ferry ride over we were talking to some friends who...long story made short...put us in touch with a nearly new, free dishwasher. God works in mysterious ways.

Monday, April 7, 2008

The road goes ever onward...

It's been nearly two months since my last post, a fact that is reflective of our experience at home. Life has been pushed back into its normal patterns. Biz continues to heal. The boys continue to grow. Lydia has taken up a new venture--she hopes to go to Malawi this summer with Teen Missions, Int. I am surprised by the vanishing sense of control that I once thought I had over the comings and goings and desires and circumstances of family life. I suppose this illusion is best replaced by the constant awareness of God's grace in all situations and the humility to entrust our families to the Lord's care.
I've been rebuked several times for abandoning the blog. I take that as a complement because a number of people have admitted the great benefit they've received from reading it. However, there hasn't been much to say about Biz's recovery and I'm not sure that this blog is the place for other musings. As one person said, "[The blog] served its purpose for a time," and in a practical sense that time has passed. I'm also not sure that another blog published by yours truly would be met with the same interest, or convey the same benefit, as this one because this one has been about ultimate issues and the gravest of needs among people we really care about.
My purpose for this post is two-fold. The first is to enlist the prayers of any who might still look for an occasional post. This Wednesday Biz has the first of her post-treatment check-ups. These are scheduled on regular 3-month intervals and include an MRI to ascertain whether there has been any recurrence of the cancer. Three months ago I considered this routine; today it feels quite different. We will also be consulting with Dr.'s Perkins and Moe about needed reconstructive surgeries. Last week Biz registered for freshman year at our local high school and we'd like to put behind her as many of these medical issues as possible before she begins her high school career.
The second purpose for this post is...to follow. I have struggled with some other lessons since things have "settled down," lessons that I trust will be important later, but time compels me to publish this much.

Saturday, February 16, 2008

Back to Normal

Judging by the number of phone calls we've received for updates, this post is long overdue. So:
Deb and Biz got back to the island Wednesday, and Biz looks 200% better! She had a couple of bacterial infections, including staph, but the rash appears to have been a reaction to some ingredient in the moisturizer that she was using. The dermatologist at Children's Hospital said that it could take up to six weeks to subside and since Biz was not nauseous or feverish she may as well go home--with instructions to keep a close eye on things. Well, we have kept a close eye on things and the rash has faded fast, almost completely gone in just the past 3 days! I think she may be allergic to hospitals at this point.
I thank the Lord for the encouragement this has been. Our need for prayer has not lessened, however; it has just refocused. These events have taken their toll on us, while functioning as some of the greatest spiritual growth fertilizer possible. I can tell from my own short fuse and my lack of focus at my desk that I'm tired, so I need grace to respond with patience and diligence. We have also gained great insight into our children's and our family's strengths and weaknesses. Pray that we can best encourage growth in both.
We're glad to be back together in, what appears to be, normal life. But I've learned that normal is a matter of perspective and that sometimes "normal" is just habit and hinders us from seeing the things God would want us to see--about Him, about us, about life. Hebrews 12 reminds us that the "abnormal" confirms that we are God's children--Him at work to change us and help us see what He sees.

Saturday, February 9, 2008

So close and yet...

The doctors have given Biz clearance to travel as far away as Mount Vernon where our friends, Anne and Taylor Long, live. They (the doctors, not Anne and Taylor) took some cultures yesterday and found that Biz has staph and some other bacteria, the name of which Deb could not recall. Since Biz's body is not yet responding to the antibiotics they don't want her, in the event of complications, being a ferry ride away from the mainland, or needing to be air lifted in the high wind season. The plan is to check her out and reevaluate the situation on Tuesday. Until then, Anne and her girls (a wild and crazy bunch) will offer some much needed fun and distraction.
The upside of all this is that Biz is not feeling "ill." The rash is unrelenting (and itchy) and has the doctors concerned to see improvement, but she is not nauseous or feverish. She's on a lot of medication at the moment, but we keep asking the Lord to use it all to her well-being.

Divine provision

Deb and Biz did, in fact, take me up on my encouragement to consider their clothing need a "providential opportunity," and, true to form, Deb called to tell me about the great deals and 75% off that she got at Eddie Bauer. Biz, too, was able to get a few things because the doctor gave her a "pass" that permitted her a few hours away from from the hospital. I thank the Lord for opportunities like that as they have a way of softening the harsh edges of medical treatment. I'm sure the girls had fun.
The dermatologist seems to know the source of the problem, apparently an allergic reaction to one of the creams she had used as a moisturizer. She hadn't used it in several days, but with her body in a more vulnerable state right now, the reaction was able to spread without much immediate response to the antibiotics. They are fairly confident that she just needs more time for the medication to do its thing.
1 Cor. 10:13 promises us that the Lord will never give us more than we can handle, but these circumstances remind me that I am not the determiner of how much that is. The Lord knows the limit and must at times take us to it. It also reminds me that it isn't a promise about how much we can handle in our own strength. Taking us to the limit is how the Lord gets us beyond self-reliance and on to dependence upon Him. As in all things, that is the goal.
We have no word yet about when Biz will be released; hopefully today but we have determined not to rush things. Our desire is to see her well and recovering--what's another day in comparison to that.

Friday, February 8, 2008

Evening Update

It doesn't look like the doctors will be releasing Biz for a day or two, until they can get a handle on the nature of the rash. She had an appointment with a dermatologist this afternoon, but I have not yet gotten word about its outcome.
One point of thanksgiving: Deb and Biz are in Seattle! They were entirely unprepared for an extended stay, but at least it feels more like home, and is many, many miles closer. Except for her frugality, Deb might have considered this a providential opportunity--hit the mall down the street and buy some new clothes! At least Biz gets a fresh and stylish hospital gown everyday; Deb has only the clothes she wore down there.
Another point of thanksgiving: Craig Denney, a missionary to Thailand that we support at our church, will be at our speaking for our worship service on Sunday! That sure helps when your thoughts are 100 miles away. Once again the Lord's timing is impeccable.

Morning Update

I just spoke with Biz a few minutes ago. I asked her how she was feeling and she said, "itchy." The IV appears to have had no effect last night. In fact, the rash has spread to her neck and stomach. I have no doubt the doctors will figure this out, but please keep praying to that end. Our conversation ended when the doctors came to take her away for CT and minor procedures.
Well, gotta get Lyd to school. Sometimes life makes big circles.

Thursday, February 7, 2008

Another Night in the Hospital

Biz will be spending at least one more night in Children's Hospital.
At about 10:30am she and Deb took the ferry to the mainland and sped down to Seattle to meet with Dr. Perkins about unexpected swelling and a rash arising in the radiated area of her face. The rash has now spread to her hands. Dr. Perkins could not identify the cause with certainty, so they admitted Biz and put her on an IV antibiotic. Tomorrow they want to take another CT scan and do some minor O.R. procedures.
Biz is exceedingly disappointed. She (and we) expected her departure from Houston to begin a doctor/hospital reprieve. Please pray that her spirit will be buoyed up in the Lord. Pray, too, for the doctors to find out what they need to find, and for Biz to get the reprieve she's been longing for the past four months.

A trip to the ER

I'm not sure how many people will be reading the blog now that Deb and Biz have come home, but a brief update is needed today.
Biz arrived home with a noticeable "radiation sunburn" on the left side of her face. While this is typical and goes away, Biz's face, especially around her eye, has been becoming increasingly swollen, and in the last few days a rash has sprung up that is spreading to both sides. She is also experiencing a little blurring of her vision in her left eye--a first for Biz. Dr. Kornguth, the radiation oncologist at MD Anderson, said that by now we should be seeing marked improvement. Thus far it has only grown worse. So...
Deb and Biz are, at this moment, headed to the Emergency Room at UW/Children's Hospital at Dr. Perkins' recommendation. Please pray for Biz's health and healing.

P.S. for Bev L.: Why Rod Stewart?--because he's made a career of romantic love songs and my wife was coming home. It would have been more pastoral of me if I'd have said I had an urge to play the Bill Gaither Trio but, like that would ever happen! No one would have believed me.

Friday, February 1, 2008

Headed home 7

6:00pm
Time to go
Gotta get flowers, gotta get chocolate, gotta be there when they get in...
strange urge to play some Rod Stewart music

Headed home 6

4:00pm
House is looking pretty nice;
Went to buy flowers, but forgot my wallet...will try again
Lydia brought Lita home to help her clean; she NEEDS the help

Heard from Biz and Deb; they've landed at Seatac!
So close...they're waiting for a shuttle to Boeing;

Headed home 5

2:50 pm
floor mopped; boys room cleaned.
Gotta pick up Lydia.
girls 15 minutes from landing at Seatac

Headed home 4

1:55 pm
leak fixed;
girls nearing Wyoming

Headed home 3

1:40pm
Leak discovered under kitchen sink...great...
girls still over Colorado

Headed home 2

1:30pm
Kids schooled and fed and bathed (at least they can do the latter two themselves!);
rugs shaken, floors swept;
girls somewhere over Colorado.

Headed home

10:00am
Sheets cleaned, beds made; girls checking through airport security

We've altered the plans slightly. Rather than pick the girls up at the airport, we decided to fly them to the island from Seattle on a puddle jumper. With ferry lines and schedules, rush hour traffic, and basic travel time, this will save us (me, Lyd, and the boys) about 12 hours, plus it'll keep Lyd from missing a day of school. Deb and Biz will arrive on the island around 7:00pm, saving them about three hours. The biggest (unstated) advantage is the 9 hours extra it gives us to get everything in order (plus buy some flowers).

Tuesday, January 29, 2008

Two more days!

Lydia, Connor, Sam, and I are getting excited, and I'm sure Deb and Biz are getting itchy feet. After today's treatment (which may have already happened) there are just two cycles left: Wednesday and Thursday. I don't think they'll be disappointed to leave the M.D. Anderson Cancer Center, though as Deb and Biz say goodbye, it will be with much gratitude in our hearts. The Lord has carried us, and especially Biz, through these days and he has used some great people and competent medical professionals in Houston along the way. Although this won't be "the end" of medical attention to address Biz's cancer and the side effects of her treatment, we have (Lord willing) jumped the major hurdle.
On Friday, the girls will say goodbye to the Pogues, and fly home. The Pogues' sacrifice on our behalf is well-noted, and our gratitude could not be greater--imagine having your life disrupted by a second family under your roof. I've always been told that fish and visitors stink after three days (a view which I find disconcertingly inhospitable...), but after two months anyone should be "sainted" or "knighted" or some similar thing.
Deb and Biz will touch down at 3:06pm. The kids and I will meet them at the airport and (imagine this) come straight home. We hope to bring them back to a warm, clean, comfortable home--the one they remember. There have been points over the last two months when Deb would not have recognized the place, but with a little attention over the next couple days we should pass muster. I know that Deb wouldn't care or complain, she'll just be glad to be home. But after all she's had on her plate for the last couple of months (along with an increased appreciation on my part for all that she does), I hope to make the transition an easy one. We'll call it the "Love Language" of house cleaning.
For Biz, the transition will be from "only child" to daughter with siblings. That's where life will become normal again--for all the kids--and thank God for normal.

Friday, January 25, 2008

She would dance if I asked her to dance (not that I would, the time isn't right for dancing yet:), but that should give you an idea what a better day yesturday turned out to be. I know she is still tired, but she's also seeing the light at the end of the tunnel. We go home a week from today.
We are so grateful to our hosts, John and Charlsie Pogue, who have been absolutely wonderful to us. Biz has enjoyed countless games of dominoes with John, and Charlsie has spoiled her with shopping trips and visits to Starbucks. They are both extremely caring people who overwhelmingly took us into their hearts and lives. We couldn't have asked for a better stay in Houston. We'll miss them. But we still look forward, with anticipation, to going home. Only seven days to go.

Wednesday, January 23, 2008

I thought I (Debbie) would be better at updating you on our last few days here in Houston since I am here with Biz. To all of you who have been praying, we are extremely grateful. Yesterday and today have been pain free for Biz. The night before last she was up in the middle of the night for 2 hours because the pain was so severe. We talked to the doctor today and he said that even though pain is a hard thing to predict, it could get worse, and it would be normal if it did. That was a bummer to hear, but I know that the Lord is not subject to "normal", so I am counting on your prayers for Him to do what would be abnormal and even supernatural on Biz's behalf. As I was running this morning I wondered how much pain he has kept her from already. I guess we'll find out when we get to heaven.

Although Biz did not have any pain today, we had a struggle of a different kind tonight. She had a major meltdown over wanting to go home. She has made occasional comments all along about missing friends and not being with her brothers and sister, but tonight she just kept crying, "Why can't we go home today?" For those of you who know me very well, I am not the best comforter. And for those of you who know Biz very well, she's not much of a crier. What a combo. I wasn't sure what to say. The thoughts going through my mind came out of my mouth, though maybe they shouldn't have. I answered her with the facts of how many more treatment sessions we have and how the doctors know what is best, so we can't go home yet. Of course I walked away feeling completely inadequate. Did I say the right thing? Should I have said nothing at all? I did pray with her, and hug her. But I sure would appreciate your prayers that I would be able to provide the comfort and encouragement she needs. We are counting down the days until we are back home on the island.

Monday, January 21, 2008

The Highs and the Lows and the Lord in both



Deb, Biz, and I had a few good days together in Houston before I left them on Friday to return to the island. Since then I've been in a melancholy funk. I don't want to use the word "depressed" because of its technical denotation, but I have been sad. One reason for my sadness is that in the last few days before my departure Biz began experiencing some of the difficulty of radiation. Nothing dramatic, just redness and swelling around her eye, but as the intensity of treatment increases with each successive cycle, all human assessment would conclude that it will become even more difficult for her. I don't want Biz to struggle through this. I have even prayed that the Lord would let me feel the struggle instead of Biz. Perhaps that's the reason for the sadness--part of the struggle. It may be important for Biz to struggle and through that find strength in Christ--the Lord knows best--but I'd ask you to pray for her comfort and peace in Christ.
Another reason for sadness is the toll that this process has taken on our family. When it's all said and done, normal family life will have been disrupted for four months. In many ways this has made us stronger, in some ways it has revealed weaknesses that lay hidden, and in a few ways it has weakened us. Satan is cunning and would love to use the latter two to our harm. But as I studied for yesterday's sermon I was reminded continually:
Isaiah 43:1-7
But now, this is what the LORD says-- he who created you, O Jacob, he who formed you, O Israel: "Fear not, for I have redeemed you; I have summoned you by name; you are mine.
When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze.
For I am the LORD, your God, the Holy One of Israel, your Savior; I give Egypt for your ransom, Cush and Seba in your stead.
Since you are precious and honored in my sight, and because I love you, I will give men in exchange for you, and people in exchange for your life.
Do not be afraid, for I am with you; I will bring your children from the east and gather you from the west.
I will say to the north, 'Give them up!' and to the south, 'Do not hold them back.'
Bring my sons from afar and my daughters from the ends of the earth--everyone who is called by my name, whom I created for my glory, whom I formed and made."
The Lord's children are precious and honored in his sight. It is clear from the surrounding context of this passage that this status is not a consequence of our merits or effort. Rather, it is because the Lord chose us and called each of us by name--not generically, as if a great call goes out to all mankind and we are free to choose him or not; but specifically, He chose certain ones for himself and his glory and establishes a relationship with them. He formed and created a distinct people for Himself, and He is even willing to sacrifice others for our rescue--even sacrificing His own Son. So our strength and perseverance is not assured by our desire, but by God's desire. We belong to the Lord, and He doesn't like others messing with his stuff. Like a tattered and dirty childhood doll, our value and protection is not the result of our inherent value, but of the value placed upon us and the love invested in us by our Owner.
There is also no abandonment in the fire and in the waters. Fire and waters are assured. The Lord does not say, "If..." He says "When..." But he says, "Do not be afraid, for I am with you." We're never left alone on the journey. Christ says, "I chose you, and I take very good care of my stuff." So we're not going to lose. We just may need to learn to swim a little bit. Please pray for our faith and perseverance.
For those of you who may be forgetting what Biz looks like, I've pasted a few pictures. They're somewhat dated but you'll get the point. It's a great reminder of the blessing God has given us in our daughter, and of just how much more we'd be willing to endure for her sake.

Monday, January 14, 2008

Transition

Another transition week has come. Deb will arrive in Houston on Tuesday to take over duties here and I'll return on Friday to take over at home. Deb will then stay until the end, returning home, Lord-willing, on Feb. 2. What a great day that will be!
Everything in Houston appears to be going better than expected. Treatments go on as usual, and Biz has had little to no negative side-effects from her treatment. I am surprised, however, at how many times the computers that operate the proton generators shut down/crash. With the millions and millions (billions?) of dollars that go into such a facility, you'd think it'd be more seemless--I guess a computer is the weak link in most areas. When the computers go down here it doesn't usually take very long to get everything back on line, and I guess it gives the world's I.T. guys some job security, I just didn't expect it at what seems to be the apex of modern technology. One more reason to look forward to heaven--no need for computers!

Wednesday, January 9, 2008

Praises and prayer needs

Wouldn't you know it--I have a cousin in Texas! And he has four horses! We hadn't seen each other for 30 years and, until my dad called to tell me that Dana lives in Caldwell, TX, about 90 miles away, I had no idea (the Lord knows everything, however, even where to place cousins). So, with the mention of horses, it was a relatively easy task to convince Biz that we should go visit Dana and his family, which we did this past weekend. It was my first opportunity to see some of the beauty of the Texas countryside. Though it's nothing like the Northwest, it has a beauty of its own (which was undoubtedly accentuated by the saddle). Dana's son, Phil, is a student at Texas A&M in their computer progamming department so we also got to spend some time messing around with a Wii and playing (very poorly) Guitar Hero. It was a fun and relaxing weekend.
On Monday we had our weekly meeting with Dr. Kornguth. He checked Biz's eye, throat, etc.--those areas that are often affected by radiation--and said that her body is responding remarkably well. Biz has no sores, blisters, redness, or other tell-tale signs of the radiation. Your prayers on her behalf have been powerful and effective.
Please continue in prayer for the rest of our family, too. Here at just beyond the mid-way point, we're all longing for some normal life. We'd do it all over again if circumstances necessitated, but we'd appreciate your prayers for our perseverence.

Wednesday, January 2, 2008

Happy times

The worst thing about the post-9/11 security at the airports is not the long line that you must wait in to get through the check points, nor fact that they make you remove your shoes when you get there (?!). The worst part is that when you take your wife and kids to the airport you can't walk them to the gate and see that they get away o.k. You just drop them off at the curb. So it was good to get the call from home telling me that they made it safely and according to plan. Deb and the kids arrived home to a warm house and a warm meal thanks to the loving effort of some friends, and Biz and I have begun the daily routine. I must admit that I'm not as good at this routine as Deb, but mine usually includes Starbuck's, so there are SOME advantages to having Dad take over.
We had a happy moment today as Arjun, the 6 year old boy from Seattle that I asked you to pray for, had his last treatment! He came out holding his mask, painted just like Spiderman, with a huge smile on his face. His overall cancer treatment is not finished, so you can still pray for him and his family, but he is done with radiation and experienced very little negative side-effect during the course. I have exchanged addresses with his dad and hope to see them again.
Biz's mask remains unpainted (she's a little too old, and a little too young, for that kind of nonsense). I suggested she paint it to look like me, but she didn't go for it.

Girls at pool

Girls at pool
poor Garret...